Today was the day--this morning one of our doctors ordered Delaney onto the low flow oxygen system. Her breathing issues these days seem to revolve around straining and squirming and holding her breath rather than central apnea. We hope Delaney can make low flow work so we can move on to greener pastures. It was beautiful day in Grand Junction. Our thoughts go to Jennifer's brother Rick and sister-in-law Dusti who experienced a catastrophic fire last night in their garage/bonus room. We hope they are able to make it through this tough time and know that with Rick's carpentry skills they will be able to quickly rebuild from the ashes.
That is one cute little girl, saturday's picture looked like she was laughing. Hopefully all will progress well on the lower oxygen and you all will be heading home soon. Have a good week
ReplyDeleteDiane and Jim
Wonderful news!!! Goodbye (and good riddance), central apnea!
ReplyDeleteSounds like you're growing right on schedule, Delaney. Just keep doing what you're doing and you'll be home before you know it!