Today has been a little rough. Our nurse today was concerned that our "honey-moon" period may be coming to an end. Delaney had a lot going on this morning with care periods and a second echocardiogram to check on the progress of her heart. There is a "valve" in her heart that needs to close now that she is post-partum. We have not yet heard the final word, but the valve seems to be in a transitional state- hopefully it will be completely closed soon. More alarms were going off today in her room (which takes a lot of getting used to) and she had several apnea episodes that required some stimulation to get her breathing going again. She gets tired easily, and for a preemie her age, the simple act of breathing takes a lot out of her. Because she was tired today, we agreed to hold off on kangaroo care, which was a bummer. Tomorrow, the staff plans to give her a "day off", so she won't be poked or prodded unless necessary. Our lives remain chaotic, and we are slowly trying to restore some semblance of normalcy.
The girls have been looking at the pictures and were so excited to see "Baby Delaney having a suntan just like they had!"
ReplyDeletewe are all thinking about you guys everyday! Be strong! mark
ReplyDelete